This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License
Margaretha Jenholt Nolbris, Agneta Simeonsdotter Svensson, Anna-Lena Hellström
The Centre for Person-Centered Care (GPCC); The Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg; The Centre for Children’s Right to Health, Queen Silvia Children’s Hospital, Gothenburg, Sweden The Centre for Person-Centered Care (GPCC); Department of Education, Communication and Learning, University of Gothenburg, Gothenburg, Sweden et al.
Aims and objectives: The aim of the study was to evaluate support in daily life, in terms of one-year outcomes of a person-centered web-based programme. Background: Children with a chronic disease are at risk of ill health. In school they are vulnerable as they differ from the other children. The united nation convention on the rights of the child awards them rights concerning the promotion of their health and wellbeing. Design: Descriptive qualitative design. Methods: The study was conducted from 2014-2015. Open questions were used in Skype conversations between children and web teachers (a mean of 12 conversations per child). Data were analyzed using qualitative content analysis Results. The web-preschool was found to support the ability to understand, reflect, discuss and find tools dealing with different situations. Sense of coherence was important. The development of verbal and communication skills was clear. The programme included images, narration and two-way Skype communication between child and web-teacher with the possibility of offering flexible support depending on needs. Conclusion: The web-based programme offered support in daily life for the participants—children aged 3-7 years with long-term illnesses.
children, health promotion, long-term illness, malformation, person-centered care, paediatric urology, Skype
Margaretha Jenholt Nolbris, Agneta Simeonsdotter Svensson, & Anna-Lena Hellström. (2016). Skype Support for Preschool Children with Long-Term Illness—One Year Follow-Up. Psychology Research, 6(2), 69-78.
Antonovsky, A. (1987). Unravelling the mystery of health: How people manage stress and stay well. San Francisco, Calif: Jossey-Bass.
Berg, M., Adolfsson, A. S., Ranerup, A., & Sparud-Lundin, C. (2013). Person-centered web support to women with type 1 diabetes in pregnancy and early motherhood—The development process. Diabetes Technology & Therapeutics, 15(1), 20-25. doi:DOI: 10.1089/dia.2012.0217
Berntsson, L., Brydolf, M., Berg, M., & Hellström, A. (2007). School children and adolescents’ perception of health, wellbeing and participation. Scandinavian Journal of Caring Sciences, 21, 419-425.
Darcy, L., Knutsson, S., Huus, K., & Enskär, K. (2014). The everyday life of the young child shortly after receiving a cancer diagnosis, from both children’s and parents perspectives. Cancer Nursing, 37(6), 445-456.
Docherty, S., & Sandelowski, M. (1999). Focus on qualitative methods: Interviewing children. Research in Nursing & Health, 22(2), 177-185.
Ebert, A., Scheuering, S., Schott, G., & Roesch, W. (2005). Psychosocial and psychosexual development in childhood and adolescence within the exstrophy-epispadias complex. Journal of Urology, 174(3), 1094-1098.
Ekman, I. (2015). Swedish initiative on person centred care. BMJ Feb 10. doi:350:h160. doi: 10.1136/bmj.h160
Gregory, J. (2003). Scandinavian approaches to participatory design. . Journal of Engineering Education, 19(1), 62-74.
Hellstrom, A., Berg, M., Sölsnes, E., Holmdahl, G., & Sillén, U. (2006). Feeling good in daily life—From the point of view of boys with urethral valves. Journal of Urology, 179, 1742-1746.
Hellström, A. L., Simeonsdotter Svensson, A., Pramling Samuelsson, P., & Jenholt Nolbris, M. (2012). A web-based programme for person-centred learning and support designed for preschool children with long-term illness: A pilot study of a new intervention. Nursing Research and Practice, 2012. doi:10.1155/2012/326506
Holmdahl, G., Sillén, U., Abrahamsson, K., AL, H., Kruse, S., & Sölsnes, E. (2007). Self-catheterization during adolescence. Scandinavian Journal of Urology and Nephrology, 41(3), 214-217.
Josefsson, U., Berg, M., Koinberg, I., Hellström, A., Jenholt Nolbris, M., Ranerup, A., . . . Skarsater, C. (2013). Person-centred web-based support-development through a Swedish multi-case study. BMC Medical Informatics and Decision Making, 13(119). doi:10.1186/1472-6947
Kortesluoma, R., Hentinen, M., & Nikkonen, M. (2003). Conducting a qualitative child interview: Methodological considerations. Journal of Advanced Nursing, 42(5), 434-441.
Krippendorff, K. (2013). Content analysis: An introduction to its methodology (3 ed.). California, USA: Sage Publications.
Lundblad, B., Hellström, A., & Berg, M. (2010). Children’s experiences of attitudes and rules for going to the toilet in school. Scand J. Caring Sci., Jun., 24(2), 219-223. doi:10.1111/j.1471-6712.2009.00707.x.
Nilsson, S., Björkman, B., Almqvist, A. L., Almqvist, L., Björk-Willén, P., Donohue, D., . . . Hvit, S. (2013). Children’s voices—Differentiating a child perspective from a child’s perspective. Developmental Neurorehabilitation, Aug. 7.
Nilsson, S., Buchholz, M., & Thunberg, G. (2012). Assessing children’s anxiety using themodified short state-trait anxiety inventory and talkingmats: A pilot study. Nursing Research and Practice, 2012, 7. doi:10.1155/2012/932570
Nolbris, M., Abrahamsson, J., Hellström, A., Olofsson, L., & Enskär, K. (2010). The experience of therapeutic support groups by siblings of children with cancer. Pediatr. Nurs., 36(6), 298-304; quiz 305.
Pramling Samuelsson, I., & Asplund Carlsson, M. (2008). The playing learning child: Towards a pedagogy of early childhood. Scandinavian Journal of Educational Research, 52(6), 623-641.
Simeonsdotter Svensson, A., Pramling Samuelsson, I., Hellström, A. L., & Jenholt Nolbris, M. (2013). Experiences of Skype communication in education and research—Data collection concerning young children with long-term illness. Early Child Development and Care (in press). doi:10.10.1080/03004430.2013.841154
Sjöberg, C., Amhliden, H., Nygren, J. M., Arvidsson, S., & Svedberg, P. (2015). The perspective of children on factors influencing their participation in perioperative care. Journal of Clinical Nursing, 24, 2945-2953. doi: 10.1111/jocn.12911
Sommer, D., Pramling Samuelsson, I., & Hundeide, K. (2010). Child perspectives and children’s perspectives in theory and practice. New York: Springer.
Spinuzzi, C. (2005). The methodology of participatory design. Technical Communication, 52, 163-174.
Taylor, S. J., & Bogdan, R. I. (1998). Introduction to qualitative research methods: The search for meanings (3 ed.). New York: John Wiley & Sons Inc..
UN. (1989). Convention on the Rights of the Child Document (A/RES/44/25.).
Wilson, C., Pistrang, N., Woodhouse, C., & Christie, D. (2007). The psychosocial impact of bladder exstrophy in adolescence. Journal of Adolescent Health, 41(5), 504-508.
Zoffmann, V., Harder, I., & Kirkevold, M. (2008). A person-centred communication and reflection model: Sharing decision-making in chronic care. Qualitative Health Research, 18, 670-685.